JOIN USThe High Court on Monday directed the state government to treat patients suffering from Lysosomal Storage Disorders (LSD) at the Indira Gandhi Institute of Child Health.
The state government counsel said there was no response from the Centre for financial assistance to treat the patients as more than Rs 20 lakh is required for treating each patient. However, the counsel representing the central government said he was not aware of it. Hearing a PIL filed by the Lysosomal Storage Disorders Support Society (LSDSS), a division bench comprising Chief Justice S K Mukherjee and Justice Ravi Malimath said patients who have already been identified, must be given treatment and the cost of treatment can be dealt with later on.
The petitioner said that LSD is a rare genetic disorder which affects one in 8,000 live births. The treatment for the disorder is available in the form of enzymes which significantly alter the progression of such disease. Due to the rarity of the disease, the treatment of the disease is very expensive. The petitioner said that there are at least 40 identified patients mainly children below the age of 14 years suffering from LSD in Karnataka. The bench directed the government advocate and the Central governments to discuss the matter and submit a compliance report after three weeks.
Hearing adjourned
The High Court has adjourned to Tuesday the hearing of the petition filed by IPS officers Pronab Mohanty and AM Prasad who have challenged the Madikeri court order.
The IPS officers have sought directions from the Court to set aside the Madikeri court order directing the police to probe the suicide of DySP M K Ganapathi.